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The psychosocial consequences of pediatric multiple sclerosis

From the National Pediatric MS Center at Stony Brook (W.S.M., M.C.M., L.B.K.), NY; Pediatric Multiple Sclerosis Clinic at the Hospital for Sick Children–Toronto (J.R.B.), Canada; and National Multiple Sclerosis Society (N.J.H.), New York, NYM. is currently at New York University School of Medicine.

Address correspondence and reprint requests to Dr. William S. MacAllister, New York University School of Medicine, Department of Neurology, 403 East 34th St., 4th floor, New York, NY 10016; e-mail: william.macallister{at}med.nyu.edu

Although psychological distress and cognitive dysfunction are well documented in adults with multiple sclerosis (MS), they are poorly understood in children with the disease. Psychosocial difficulty experienced by children and adolescents with MS involves factors common to all chronic illnesses in children, as well as MS-specific factors. The psychosocial manifestations of the disease may affect the patient’s self-image, role functioning, mood, and cognition to adversely affect schooling, interpersonal relationships, and treatment compliance. Furthermore, the impact of having a family member with MS may affect overall family functioning. Assessment and interventions for psychosocial and cognitive problems in pediatric MS should be multidisciplinary in nature and address the child’s functioning at home, school, and among peers, as well as the effect on the family.

*Members of the International Pediatric MS Study Group are listed in the Appendix.

Disclosure: The authors report no conflicts of interest.

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				D. Pohl, E. Waubant, B. Banwell, D. Chabas, T. Chitnis, B. Weinstock-Guttman, S. Tenembaum, and for the International Pediatric MS Study Group Treatment of pediatric multiple sclerosis and variants Neurology, April 17, 2007; 68(16_suppl_2): S54 - S65. [Abstract] [Full Text] [PDF]